At the Ignite event on 5 September at the Berry School of Arts, every speaker gave us something to think about. Over the next few weeks, I will be sharing highlights from each presentation. You can find the presentations as they are published here.
When Josephine Wyborn walked onto the stage, she shared her sister Leigha’s story. Leigha was born with cerebral palsy and an intellectual disability. She lived with joy and strength, but she died at only 25. Not from her disability, but from a health system that failed her.
Leigha’s story is not rare. People with intellectual disability die up to 20 years earlier than others, and 40 percent of those deaths are preventable.
For weeks Leigha complained of stomach pain. Each visit to the GP was met with dismissal, chalked up to “probably just a pulled muscle.” By the time she was finally rushed to hospital, it was too late. She had a life-threatening condition, necrotizing pancreatitis, and her body had already been badly damaged. Six weeks in hospital followed. Communication was broken, staff were unprepared, and the system created fear instead of safety. Leigha eventually came home, but without proper follow-up care. Two weeks later, she was back in hospital with sepsis. This time, she never made it home again.
Josephine’s voice was steady, but the heartbreak was clear. And then she gave us the bigger picture. Leigha’s story is not rare. People with intellectual disability die up to 20 years earlier than others, and 40 percent of those deaths are preventable. Yet fewer than 20 percent of GPs are trained to care for them. Too often symptoms are dismissed, pain is minimised, and communication needs are ignored.
“Leigha not die from her disability. She died from a health system that failed her.”
But Josephine did not leave us with despair. She spoke about what happens when inclusion is present.
When people with intellectual disability are welcomed in schools, gyms, workplaces, cafes, and everyday life, their health and wellbeing improves. When communities open doors, networks strengthen, mental health lifts, and people live longer, happier lives.
She painted a picture of what that looks like:
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A gym where every class is adapted so all can join.
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A dance floor where no one is left on the sidelines.
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A café with easy-read menus so everyone has choice.
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A schoolyard where belonging starts on the very first day.
Her message was simple and unforgettable. Inclusion is not a nice-to-have. It is the difference between dignity and neglect, between health and illness, and sometimes even between life and death.
Leigha deserved better. All people with intellectual disability do. And as Josephine reminded us, every one of us has a role to play in making inclusion part of daily life.
People with intellectual disability die up to 20 years earlier, and 40 percent of those deaths are preventable.
Inclusion is not optional. It is the difference between dignity and neglect, health and illness, and sometimes even life or death.
Every choice we make towards inclusion matters.
📸 Images used in this post are for commentary and community storytelling. Credits belong to the original photographers and sources. Please contact me if you would like an image credited differently or removed.
#IgniteBerry #JosephineWyborn #InclusionMatters #IntellectualDisability #HealthcareEquity #DignityInHealthcare #CommunityInclusion #EveryLifeCounts #Belonging #HealthForAll













































